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| Giant Hero - Book review |
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| Written by Corinne O'Flynn | |
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One couple's journey through loving and letting go of a son with Potter's Syndrome. Giant Hero is a wonderful book that tells the bittersweet story of the pregnancy and short life of Titus Bellephant, diagnosed in utero with Potter's Syndrome (bilateral renal agenesis). Through the telling of this story, written by a journalist and friend of the family, we get a glimpse of the Bellephants, the trial they endure through the pregnancy and birth of their son, how faith played a role in their journey, and how they faced their grief after Titus was gone. I especially liked Chapter 15, where the author asks specific questions and the answers are shared in an interview style. It made the family so real, so typical. I believe that tragedy is viewed by many people as something that happens outside of their own circle. And I also know that when tragedy strikes, it brings with it an isolation like nothing else. This book is a terrific resource for anyone facing a diagnosis of Potter's Syndrome in their child, or for those who will support them. This book was inspired by the parents' desire to create a substantive resource for future families whose baby receives this diagnosis. The result is a beautiful tribute to their son, a portrait of an everyday family dealing with something that happens "to someone else", and a fact-based explanation of Potter's Syndrome, what it means, and where to find support.
Soft Cover, 126 pages |
Told by Angie and Cecil Bellephant, Written by Tracy Ahrens
